Speeding Therapy Access Today
Removing Regulatory Roadblocks There are over 7,000 identified rare diseases and disorders in the world.…
Virtual Meeting Day: Senators
Attend a virtual meeting with the Senators and their staff members from your home state.
Virtual Meeting Day: Congressional Representatives
Attend a virtual meeting scheduled for you with Members of Congress and Staff from your…
Virtual Rare Disease Bi-partisan Congressional Caucus Briefing
“Rare Disease Therapy Development: Existing Challenges and Proposed Innovative Solutions” Convenes policy experts and rare…
2021 Silent Auction Items Donations
2021 Silent Auction Let’s be honest. Our annual silent auction would never be the successful…
Superficial Siderosis Neuroprotection Study
Antioxidant Supplementation For Enhancement Of Neural Protection From Free-iron Toxicity In Superficial Siderosis Our inaugural…
2021 Congressional Lobby Event
It’s A Virtual World It’s lobby day for your SSRA advocates! Rori Daniel will be…
Our Coder Search Begins
Measuring The Iron When a Two-year observational study on the efficacy of deferiprone1 was released,…
Banding Our World Together
Sharing The SSRA Mission
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