SSRA Leadership | Superficial Siderosis Research Alliance

SSRA Leadership

Share

SSRA Board of Directors

The Superficial Siderosis Research Alliance Board of Directors 2021

Kyle Dempsey

President

Deb Zindler

Director

Rori Daniel

Vice President

Randy Kohler

Member-at-Large

Mike Anderson MD

Member-at-Large

Lloyd Gleisner

Treasurer

Mike Piasecki

Member-at-Large

Kelly Morgan

Member-at-Large

Sue Dempsey

Secretary

Marcia Harris

Member-at-Large

Julianne’s Superficial Siderosis Odyssey September 16, 2023
Originally published in June 2021, we’re revisiting some of the most inspiring personal journeys gracing our pages. Today, we’re peeking into the extraordinary life of Julianne—a woman whose resilience and determination have turned superficial siderosis challenges into stepping stones. Tasmania, Australia Meet Julianne, a 64-year-old dynamo hailing from Devonport in northern Tasmania. For those unfamiliar […]
Julianne Singline
Coping with Urinary Incontinence September 12, 2023
Urinary incontinence is a medical condition characterized by the involuntary loss of urine. While we refer to incontinence as a symptom, it may be considered “secondary to superficial siderosis” because it results from the damage or dysfunction the deposition of iron causes. It can develop in various forms, ranging from a slight leakage to a […]
Rori Daniel
Captain Robert Cameron September 7, 2023
A Nostalgic Look Back: Celebrating Success Stories for SS MonthOriginally published in April 2018, we’re taking a moment during Superficial Siderosis Month to revisit some of the most inspiring personal journeys that have graced our pages. Today, we’re diving deep into the extraordinary life of Robert Cameron—a man who has navigated the high seas and […]
Rori Daniel
When Neurology Has No Answers: My Journey Through the Maze of Superficial Siderosis September 5, 2023
A Nostalgic Look Back: Celebrating Success Stories for SS Month We’re taking a moment during Superficial Siderosis Month to revisit some of the most inspiring personal journeys that have graced our pages. Today, we’re remembering the extraordinary journey of Bena Travis. When Neurology Has No Answers Hello, dear readers and fellow warriors in the battle […]
Bena Travis
The Psychological Journey with Superficial Siderosis September 1, 2023
Living with Superficial Siderosis (SS) is not just a physical ordeal; it’s an emotional and psychological journey that affects not only the patient but also the caregivers and family members involved. This article explores the mental and emotional aspects of living with SS, offering perspectives from patients, caregivers, and adult children. We will also provide […]
Rori Daniel
The Balance Struggle of Neurodegenerative Disorders August 21, 2023
Understanding the intricate relationship between vision, balance, and neurodegenerative disorders like Superficial Siderosis is essential.
Rori Daniel