Superficial Siderosis Advocate of the Year
Dear Superficial Siderosis Research Alliance members, We are thrilled to announce that Rhys Holmes has…
Show Your Stripes
Rare Disease Day 2023 This February 28th is a significant opportunity to raise awareness for…
In Loving Memory
With a heavy heart, we share the news of the unexpected passing of Marybeth Sullivan,…
THE SUPERFICIAL SIDEROSIS PATIENT PERSPECTIVE
Our primary focus for 2023 remains increasing enrollment worldwide by identifying SS patients through clinical…
Educate The World
September is Superficial Siderosis Month Our annual awareness campaign is a powerful way to raise…
Quiet Before the Storm
Summer Update 2022 Unbelievably we’re about to begin the second half of 2022 already. If…
SSRA Welcomes Dr. Natallia Kharytaniuk
The Superficial Siderosis Research Alliance is pleased to announce the appointment of Natallia Kharytaniuk MB…
What’s Happening in 2022
Our Progress The Superficial Siderosis Research Alliance was organized during the summer of 2019 and…
David Werring, FRCP, Ph.D., FESO Joins the SSRA Medical Advisory Board
The Superficial Siderosis Research Alliance is pleased to announce the appointment of Professor David Werring,…
ROADMAP Project
Earlier this year, the Castleman Disease Collaborative Network reached out to the SSRA with a…
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