In our world, it is increasingly difficult for physicians, clinicians, and researchers to pursue much needed life-changing discoveries because of financial and administrative barriers. This is especially true when it comes to a disorder as rare as superficial siderosis.
Working in partnership with the Superficial Siderosis Patient Registry and Living With Superficial Siderosis, alliance founders Kyle and Susan Dempsey, have envisioned a truly collaborative effort. The Superficial Siderosis Research Alliance mission is simple.
To seek, raise and provide funding in support of medical research for the benefit of the rare disease community affected by the neurodegenerative disease superficial siderosis and the identified symptoms brought on by this disease such as ataxia, hearing loss, and myelopathy.
Superficial siderosis research alliance
The Superficial Siderosis Research Alliance was recognized as a fully registered 501(c)(3) charitable organization in August, 2019 in accordance with U.S. IRS Code section 170. Donations are fully tax deductible.