In our world, it is increasingly difficult for physicians, clinicians, and researchers to pursue much needed life-changing discoveries because of financial and administrative barriers. This is especially true when it comes to a disorder as rare as superficial siderosis.
Working in partnership with the Superficial Siderosis Patient Registry and Living With Superficial Siderosis, alliance founders Kyle and Susan Dempsey, have envisioned a truly collaborative effort. The Superficial Siderosis Research Alliance mission is simple.
The Superficial Siderosis Research Alliance was recognized as a fully registered 501(c)(3) charitable organization in August, 2019 in accordance with U.S. IRS Code section 170. Donations are fully tax deductible.