caregiver respite program

Caregiver Respite Program


Caregiver Assistance

The NORD Respite Program provides financial assistance to allow caregivers a break to attend a conference, event, or simple day out. Financial assistance is offered as a grant of up to $800 annually for those who qualify. A first-of-its-kind assistance program, this grant is designed for caregivers of someone diagnosed with a rare disorder. We all understand how caring for a loved one is a generous gift that demands significant amounts of time, attention, patience, and dedication.

Covered Care

  • Registered Nurse (RN)
  • Licensed Practical Nurse (LPN)
  • Certified Nursing Assistant (CNA)
  • Home Health Aide (HHA)
  • Non-professional caregiver


  • Caregiver must be a US citizen or permenant resident of the US for a minimum of six months
  • Patient requiring care must have a confirmed rare disease diagnosis
  • Eligibility is based on meeting the program’s financial eligibility guidelines

How To Apply

There is no fee to apply. Contact a Patient Services Representative at 203.616.4328 or email

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