Superficial Siderosis Research Alliance Mission

To seek, raise and provide funding in support of medical research for the benefit of the world community affected by the neurodegenerative disorder superficial siderosis.
WHY AND HOW THE SSRA WAS FOUNDED

WHY AND HOW THE SSRA WAS FOUNDED

There is no greater force than the sense of urgency you experience when someone is diagnosed with Superficial Siderosis. This ultra-rare neurodegenerative disorder affects less than one in three million persons worldwide.

ABOUT US
LEND YOUR VOICE  SPREAD AWARENESS

LEND YOUR VOICE SPREAD AWARENESS

Request your free Superficial Siderosis awareness wristband today. You may request up to ten 1/2" debossed silicone wristbands. Shipped from points in the United States, United Kingdom, and Austraila while supplies last.

YES PLEASE
CAN WE ACHIEVE OUR GOAL?

CAN WE ACHIEVE OUR GOAL?

How does a small patient community move forward? Continue to visit multiple specialists in an effort to survive the effects of this disorder? Or do we tackle this problem head-on, together as a community, to empower research?

WHY DONATE?
CLINIC AND RESEARCH LAB

CLINIC AND RESEARCH LAB

The SSRA raises and distributes research funding to the newly founded Superficial Siderosis Clinic and Research Laboratory. Located at Mass General Hospital, Boston, patients may consult the clinic from anywhere in the U.S.

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