- About Us
Donated brain and spine tissue for the pathophysiology research portion of the Superficial Siderosis Natural History study. Pathologist fees and donor expenses for donor tissue $30,000
This study will document the disease course from prior to becoming symptomatic, through the clinical stages of progression until the natural end-course is reached. Funding Estimate $250,000 .
Identify and secure funding to continue drug research and initiate a two-year randomized double-blind placebo-controlled study of the efficacy of Deferiprone (Ferriprox). Funding estimate $250,000
A study is in the planning stage to identify a safe and effective means to expedite the iron chelation process to improve the chance for success for all patients. Funding estimate $100,000.
Complete the development of a 3D MRI tool sensitive enough to quantify existing iron and detect differences in a reliable and reproducible measure. Funding needs $50,000 This is an ongoing project
The Superficial Siderosis Research Alliance (SSRA) is pleased to announce the award of their first Four-Year $100,000 Research Grant to the Superficial Siderosis research group led by Michael Levy, MD, Ph.D., Mass General Research Institute, for the development of improved treatment opportunities, exploring alternative treatment options, and iron quantification.
When you pledge as a Business Champion or Super Supporter you control your donation schedule; either as an annual donor or by giving through monthly pledge payments you help guarantee the SSRA has a stable foundation to continue our research grant and information programs.
We’re wearing our stripes for #RareDiseaseDay on February 29, 2020. Show your support for Superficial Siderosis on social media by wearing your stripes too! Tag your pictures #showyourstripes #igniteSSRA
The SSRA is asking for your unused Kohls cash during this year-long donation drive. Contact Deb Zindler or Sue Dempsey to donate today. firstname.lastname@example.org
Gary Daniel, Champion Captain of the Month, raised $1266 for the January 2020 Captains’ donation
Show your support for the Superficial Siderosis Research Alliance by wearing an official SSRA Advocate Ambassador Pin. Contact Kyle Dempsey for details on how to receive yours!
Our 2019 financials are filing ready and the SSRA 2020 budget and fundraising goals are in place.
Superficial Siderosis Research Alliance, Inc.N28W24389 Single Tree Ct.Pewaukee, WI53072
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