Superficial Siderosis Research Alliance Mission

To seek, raise and provide funding in support of medical research for the benefit of the rare disease community affected by the neurodegenerative disorder superficial siderosis and the identified symptoms brought on by this disease such as ataxia, hearing loss, and myelopathy.

WHAT DEFINES A RARE DISORDER?

In the United States, a rare disease is defined as a condition that affects fewer than 200,000 people in the US. There are over 7,000 identified rare diseases and disorders.Superficial Siderosis is classified as an ultra-rare disorder with less than 300 cases identified in the U.S. and a yet to be determined number worldwide.
SUPERFICIAL SIDEROSIS RESEARCH ALLIANCE© 2021 - All rights reserved Federal Tax ID: 84-2515094
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