With Awareness There Is HOPE
Superficial Siderosis Research Alliance Mission
To seek, raise and provide funding in support of medical research for the benefit of the rare disease community affected by the neurodegenerative disorder superficial siderosis and the identified symptoms brought on by this disease such as ataxia, hearing loss, and myelopathy.
RESEARCH
Research builds knowledge and speeds up access to better symptom management
VOLUNTEER
We offer many opportunities to get involved. Advocacy, awareness, education, and fundraising
SUPPORT
Your gift will help fund research, education programs, patient registry services, and more
Join The Research Effort
By sharing your diagnostic and treatment journey, you help our investigators with the data necessary to conduct informed studies and ultimately identify improved treatment options and outcomes for the Superficial Siderosis patient
- Round-Up For Research
- Superficial Siderosis Awareness Month is Here
- A Digital Face to Face on Capitol Hill
- A Celebration of Life and Memory
- Speeding Therapy Access Today
- 2021 Silent Auction Items Donations
- Superficial Siderosis Neuroprotection Study
- 2021 Congressional Lobby Event
