ADVOCACY
- Rare Disease Week 2021 on Capitol Hill
- Your Federal Policymakers
- Superficial Siderosis Advocacy Guide
- Your Local News Media
- Legislative Advocate ZOOM Meeting Day is March 3, 2021
COVID-19 Vaccine
SSRA Medical Advisory for Superficial Siderosis Patients
December 10, 2020
ANNOUCEMENTS
- Our newly redesigned global patient registry and research portal are now live!


Giving Tax Strategies


Neuroprotective Antioxidant Study
On The Horizon
2021 will see the launch of our first SSRA sponsored research study designed to explore the possibility that boosting brain urate by treatment with an antioxidant could slow the brain cell degeneration of Superficial Siderosis patients. This project might substantially shorten the time needed to develop a full neuroprotection trial. Optimizing this first study’s crucial characteristics should considerably enhance the likelihood of future therapies.
Our Volunteers
Captain of the Month
Mike Hanamann



