Superficial Siderosis Information for Healthcare Professionals
We are passionately committed to supporting healthcare professionals who specialize in the care and treatment of superficial siderosis. Together, we work to enhance the quality of care for individuals affected by this rare neurological disorder.
Our organization is dedicated to delivering best-practice care education, providing up-to-date information, and expanding access to essential educational resources. Our resources are designed to assist doctors, nurses, and every healthcare team member in providing the most effective care for patients with superficial siderosis.
PATIENT RESOURCES
- MEDICAL ALERT CARDS: Order Link
- SUPERFICIAL SIDEROSIS INFORMATION BROCHURES
- DIGITAL PATIENT MAGAZINE: LIVING WITH SUPERFICIAL SIDEROSIS
- VESTIBULAR EXERCISES: Home-based vestibular exercises to help with balance and mobility. Computer, Smart TV access, or phone app download
- SUPERFICIAL SIDEROSIS PATIENT REGISTRY: Global Registry
PATIENT FACT SHEETS
- DIET AND SUPERFICIAL SIDEROSIS: Nutrition and diet recommendations to promote brain health
- CHELATION THERAPY DIET: Recommendations for staying healthy while on chelation therapy
- EXPLORING CURCUMIN: Antioxidant
- URINARY INCONTINENCE: Guideline for management
- NEUROGENIC BOWEL: Guideline for management
