Reflections
Recently our Australian SSRA director Fiona stumbled upon an Instagram photo shared by another rare…
ROADMAP Project
Earlier this year, the Castleman Disease Collaborative Network reached out to the SSRA with a…
SSRA Live Event With Dr. Michael Levy
You’re Invited The SSRA invites everyone to join our inaugural live event featuring Dr. Michael…
Game Train USA SSRA Night
Join David M. Dickson Jr., SSRA Rocky Mountain Regional Director at Game Train USA, and…
SSRA Announces Appointment of Kelly Morgan To The Board Of Directors
SSRA Leadership 2022 The Superficial Siderosis Research Alliance is pleased to share the appointment of Kelly…
Games, Trains, and SS Awareness
Game Train USA Driving December SS Awareness Game Train USA believes by championing local nonprofits…
Caregiver Respite Program
Caregiver Assistance The NORD Respite Program provides financial assistance to allow caregivers a break to…
Giving Tuesday Give 5
The Giving Tuesday Global Giving Movement What did you spend $5 on today? Every single…
SSRA Announces EURORDIS Membership
The Superficial Siderosis Research Alliance is pleased to announce its membership application to EURORDIS, a federation…
Biobanks Are Transforming Research
The Importance of Biobanks in Rare Disorders The design of the Superficial Siderosis Patient Registry…
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