Why Superficial Siderosis Research Matters
Recently I’ve been working on a new funding application for a much larger superficial siderosis…
SSRA 2021 Silent Auction
Bidding is Now Open The holidays are coming. Here’s a great way to support an…
The SSRA Marks Our Second Year
The Superficial Siderosis Research Alliance celebrates its 2nd anniversary on September 24, 2021 Since its…
The World of Digital Awareness
Sharing Our Rare Disorder Journey As part of our awareness campaign this September, our SS…
Round-Up For Research
Round Up For Research To spread awareness during September Superficial Siderosis month, Caffe’ Crema owners…
Superficial Siderosis Awareness Month is Here
Superficial Siderosis Awareness Month is Here September has arrived, and the SSRA regional directors are…
A Digital Face to Face on Capitol Hill
Rare Disease Legislative Advocacy In A Virtual World Every year representatives from rare disease organizations…
Virtual Meeting Day: Senators
Attend a virtual meeting with the Senators and their staff members from your home state.
Virtual Meeting Day: Congressional Representatives
Attend a virtual meeting scheduled for you with Members of Congress and Staff from your…
VIRTUAL RARE DISEASE WEEK ON CAPITOL HILL 2021
SAVE THE DATE RARE DISEASE WEEK ON CAPITOL HILL JULY 19TH – 22ND, 2021
Loading...