On Saturday, June 26, 2021, after struggling to breathe for nearly 30 hours, my Mom “took her big trip” at… Read More "A Celebration of Life and Memory"
Removing Reguatory Roadblocks There are over 7,000 identified rare diseases and disorders in the world. While Superficial Siderosis may impact… Read More "Speeding Therapy Access Today"
2021 Silent Auction Let’s be honest. Our annual silent auction would never be the successful event it is without the… Read More "Bigger and Better"
Antioxidant Supplementation For Enhancement Of Neural Protection From Free-iron Toxicity In Superficial Siderosis Our inaugural SSRA sponsored research project is… Read More "Superficial Siderosis Neuroprotection Study"
It’s A Virtual World It’s lobby day for your SSRA advocates! Rori Daniel will be representing the Superficial Siderosis Research… Read More "2021 Congressional Lobby Event"
Measuring The Iron When a Two-year observational study on the efficacy of deferiprone1 was released, one finding stood out. Physicians… Read More "Our Coder Search Begins"
Sharing The SSRA Mission Read More "Banding Our World Together"
This past year has certainly been an experience as we learned to navigate the waters of virtual events. Everyone is… Read More "Champions"
JX Enterprises is celebrating its 50th anniversary of leadership in the transportation industry. Since 1970, JX has grown to over… Read More "Thankful"