Privacy Policy
Who We Are
Our website address is: https://ssra.livingwithss.com.
What personal data we collect and why we collect it
Comments
When visitors leave comments on the site we collect the data shown in the comments form, and also the visitor’s IP address and browser user agent string to help spam detection.
An anonymized string created from your email address (also called a hash) may be provided to the Gravatar service to see if you are using it. The Gravatar service privacy policy is available here: https://automattic.com/privacy/. After approval of your comment, your profile picture is visible to the public in the context of your comment.
Media
If you upload images to the website, you should avoid uploading images with embedded location data (EXIF GPS) included. Visitors to the website can download and extract any location data from images on the website.
Contact forms
Cookies
If you leave a comment on our site you may opt-in to saving your name, email address and website in cookies. These are for your convenience so that you do not have to fill in your details again when you leave another comment. These cookies will last for one year.
If you visit our login page, we will set a temporary cookie to determine if your browser accepts cookies. This cookie contains no personal data and is discarded when you close your browser.
When you log in, we will also set up several cookies to save your login information and your screen display choices. Login cookies last for two days, and screen options cookies last for a year. If you select “Remember Me”, your login will persist for two weeks. If you log out of your account, the login cookies will be removed.
If you edit or publish an article, an additional cookie will be saved in your browser. This cookie includes no personal data and simply indicates the post ID of the article you just edited. It expires after 1 day.
Embedded content from other websites
Articles on this site may include embedded content (e.g. videos, images, articles, etc.). Embedded content from other websites behaves in the exact same way as if the visitor has visited the other website.
These websites may collect data about you, use cookies, embed additional third-party tracking, and monitor your interaction with that embedded content, including tracking your interaction with the embedded content if you have an account and are logged in to that website.
Analytics
1. Intro
This Cookie Policy (“Policy”) explains that we believe in being open and clear about how we use your information. In the spirit of transparency, this Policy provides detailed information about how and when we use cookies on our Websites. For this Policy, the term “Website”, shall refer collectively to livingwithss.com, livingwithss.org, ssra.livingwithss.com and superficialsiderosis.org.
2. Does Superficial Siderosis Research Alliance use Cookies?
Yes, our analytics or service providers use cookies and other technologies to ensure everyone who uses the websites has the best possible experience.
3. What is a Cookie?
A cookie is a small text file that is placed on your hard drive by a web page server. Cookies contain information that can later be read by a web server in the domain that issued the cookie to you. We may receive reports based on the use of these technologies by our service/analytics providers on an individual and aggregated basis.
4. Why does Superficial Siderosis Research Alliance use Cookies?
When you visit our websites, we may place some cookies in your browser. These are known as First Party Cookies and are required to enable to hold session information as you navigate from page to page within the website. For example, we use cookies on our Websites to understand visitor and user preferences, improve their experience, and track and analyze usage, navigational and other statistical information. You can control the use of cookies at the individual browser level. If you elect not to activate the cookie or to disable cookies later, you may still visit our website, it’s entirely up to you.
5. How to disable Cookies
You can activate or later deactivate the use of cookies through functionality built into your web browser. To learn more about how to control cookie settings through your browser:
Click here to learn more about the “Private Browsing” setting and managing cookie settings in Firefox;
Click here to learn more about “Incognito” and managing cookie settings in Chrome;
Click here to learn more about “In Private” and managing cookie settings in Internet Explorer; or
Click here to learn more about “Private Browsing” and managing cookie settings in Safari.
If you want to learn more about cookies, or how to control, disable or delete them, please visit http://www.aboutcookies.org for detailed guidance. Also, individual third-party advertising networks, including Google, permit users to opt out of or customize preferences associated with your internet browsing. To learn more about this feature from Google, click here.
Many jurisdictions require or recommend that website operators inform users/visitors as to the nature of cookies they utilize and, in particular, circumstances, obtain the consent of their users to the placement of individual cookies.
We may use any of the following categories of cookies on the Websites as detailed below.
| Category | Description |
|---|---|
| 1. Essential Cookies | Essential cookies (First Party Cookies) are sometimes called “strictly necessary” as without them we cannot provide many services that you need on the Website. For example, essential cookies help remember your preferences as you move around the Website. |
| 2. Analytics Cookies | These cookies track information about visits to the Websites so that we can make improvements and report our performance. For example: analyze visitor and user behavior to provide more relevant content or suggest specific activities. They collect information about how visitors use the Websites, which site the user came from, the number of each user’s visits and how long a user stays on the Websites. We might also use analytics cookies to test new ads, pages, or features to see how users react to them.
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| 3. Third-Party Cookies | The website includes third-party social media features, such as the Facebook share button, twitter, google plus buttons and third-party widgets, such as the ‘Share This’ button or interactive mini-programs that run on the websites. These features may collect your IP address, which page you are visiting the website, and set a cookie to enable the feature to function correctly. Your interaction with these features is governed by the privacy policy of the third party company providing it. |
Who we share your data with
We do not share any personal data other than what has been published above. We do not sell, trade, or use your email information, mailing address, or any personal information for anything other than what you have expressly consented.
How long we retain your data
If you leave a comment, the comment and its metadata are retained indefinitely. This is so we can recognize and approve any follow-up comments automatically instead of holding them in a moderation queue.
For users that register on our website (if any), we also store the personal information they provide in their user profile. All users can see, edit, or delete their personal information at any time (except they cannot change their username). Website administrators can also see and edit that information.
What rights you have over your data
If you have an account on this site, or have left comments, you can request to receive an exported file of the personal data we hold about you, including any data you have provided to us. You can also request that we erase any personal data we hold about you. This does not include any data we are obliged to keep for administrative, legal, or security purposes.
Where we send your data
Visitor comments may be checked through an automated spam detection service.
Your contact information
Our mailing address is:
Superficial Siderosis Research Alliance
Kyle Dempsey, President
N28 W24389 Single Tree Ct
Pewaukee WI 53072
Website Administrator: administrator@ssra.livingwithss.com
General Questions or comments: contact@ssra.livingwithss.com
Additional information
How we protect your data
We rely on our server protection, require website user registration and recognized internet security protocols. We are not security experts. We are volunteers who will do their best to keep your information safe and secure. Use of this website indicate you understand the internet security concerns of today’s world.
What data breach procedures we have in place
We have a system in place to notify all registered members of any data or website breach
