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Why Your Donation Matters

The Superficial Siderosis Research Alliance is a 501(c)(3) nonprofit headquartered in Pewaukee, Wisconsin. The SSRA is proud to be Guidestar Platinum rated for our reporting transparency and a Platinum member of the National Organisation of Rare Disorders (NORD). Our volunteers are working across the United States, Canada, United Kingdom, and Australia to educate and bring awareness of this profoundly disabling neurodegenerative disorder.

Superficial Siderosis is classified as an ultra-rare disorder that is often misidentified as multiple sclerosis, Parkinson disease, or multiple system atrophy. Improvements in MRI technology have now made correct diagnosis possible but unfortunately, there is no cure.

How Do We Achieve Our Goal?

The question is, how does a small unsupported patient community move forward? Simply continue to visit multiple specialists in an effort to survive the effects of this disorder? Or do we tackle this problem head-on, as a community, to empower research? This is a genuine worldwide grassroots effort. Medical Research is costly, but pennies add up to dollars and dollars add up to research funding. Every donation counts.

Thank you for your support!


Paul B Toovey


Happy to support


LaVae A Bannon


Mary Johansen


Please send acknowledgement to
Patty Sass and Family
14640 Dutch Hall Road
Bennington NE 68007

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Susan Holmes


On behalf of my son Rhys Holmes who celebrated his 30th Birthday on 16th March.
Keep up the fantastic work!


Susan Parker


In honor of the Dempsey family


Crestwood Elementary


In loving memory of Wade Dewitt McGinley




On behalf of my friend, Jack Posewitz.


Dustin Mason


In Honor of Gary Daniel. – Linden Texas


Ally & Matt Molini


Pam Dallman


Derek Clayton