Why Your Donation Matters
When you donate, you are throwing a lifeline to a seriously undersupported rare disorder population. Superficial Siderosis is classified as an ultra-rare disorder often misidentified as multiple sclerosis, Parkinson’s disease, or multiple system atrophy. MRI technology improvements have made a correct diagnosis possible, but unfortunately, there is no cure.
How Do We Achieve Our Goal?
The question is, how does a small unsupported patient community move forward? We tackle this problem head-on, as a community, to empower research. This is a genuine worldwide grassroots effort. Medical Research is costly, but pennies add to dollars, and dollars add to research funding. Every donation counts. With your gift today, you directly support the Superficial Siderosis Clinic and Research Laboratory, our first SSRA sponsored clinical trial, education campaigns, advocacy program, global patient registry, and hope.
How Would You Like To Help?
In Memoriam Mary Louise Mage
Following a lengthy battle with Superficial Siderosis (SS), Mary Louise (Agren) Mage passed away peacefully at the age of 73, surrounded by family, on June 26, 2021.
Mary was born to Walter and Norma Agren in Ryderwood, Washington. She grew up in Olequa, Washington, and graduated from Castle Rock High School in 1965. She will be remembered warmly for her strength and courage; adventurous, independent soul; love of the ocean; and playful, childlike heart.
Mary is survived by her two children, Corey ( Joy) Mage and Lori (Jen) Mage. Brother Emanuel (Jane) Agren and Glen Agren; and sister Karla Haywood. She was preceded in death by her parents, Walter and Norma Agren. A private graveside service will take place in July.
Her family requests to consider donating in memory of Mary Mage to Superficial Siderosis Research Alliance in lieu of flowers.