Why Your Donation Matters
When you donate to the Superficial Siderosis Research Alliance, you are throwing a lifeline to a seriously undersupported rare disorder community. It’s challenging to research a disorder as unrecognized as Superficial Siderosis because it’s almost impossible to find funding. The cost of a single multi-center clinical trial can exceed $1,000,000. In addition, when your patient population is less than one in three million worldwide, there are no financial incentives for giant pharmaceutical companies to step up. With almost 7,000 recognized rare conditions, the competition for public funding is extreme. We rely on compassionate researchers and the generosity of donors like you to support our research mission.