Why Your Donation Matters
Superficial Siderosis is classified as an ultra-rare disorder that is often misidentified as multiple sclerosis, Parkinson disease, or multiple system atrophy. Improvements in MRI technology have now made correct diagnosis possible but unfortunately, there is no cure.
The Superficial Siderosis Research Alliance is a 501(c)(3) nonprofit headquartered in Pewaukee, Wisconsin. The SSRA is proud to be Guidestar Platinum rated for our reporting transparency and a Platinum member of the National Organisation of Rare Disorders (NORD). Our volunteers are working across the United States, Canada, United Kingdom, and Australia to educate and bring awareness of this profoundly disabling neurodegenerative disorder.
How Do We Achieve Our Goal?
The question is, how does a small unsupported patient community move forward? Simply continue to visit multiple specialists in an effort to survive the effects of this disorder? Or do we tackle this problem head-on, as a community, to empower research? This is a genuine worldwide grassroots effort. Medical Research is costly, but pennies add up to dollars and dollars add up to research funding. Every donation counts.
Thank you for your support!
Designate Your Donation
Mary Louise Mage
Following a lengthy battle with Superficial Siderosis (SS), Mary Louise (Agren) Mage passed away peacefully at the age of 73, surrounded by family, on June 26, 2021.
Mary was born to Walter and Norma Agren in Ryderwood, Washington. She grew up in Olequa, Washington, and graduated from Castle Rock High School in 1965. She will be remembered warmly for her strength and courage; adventurous, independent soul; love of the ocean; and playful, childlike heart.
Mary is survived by her two children, Corey ( Joy) Mage and Lori (Jen) Mage. Brother Emanuel (Jane) Agren and Glen Agren; and sister Karla Haywood. She was preceded in death by her parents, Walter and Norma Agren. A private graveside service will take place in July.
Her family requests to consider donating in memory of Mary Mage to Superficial Siderosis Research Alliance in lieu of flowers.