ROADMAP Project
Earlier this year, the Castleman Disease Collaborative Network reached out to the SSRA with a…
SSRA Announces Appointment of Kelly Morgan To The Board Of Directors
SSRA Leadership 2022 The Superficial Siderosis Research Alliance is pleased to share the appointment of Kelly…
Games, Trains, and SS Awareness
Game Train USA Driving December SS Awareness Game Train USA believes by championing local nonprofits…
Caregiver Respite Program
Caregiver Assistance The NORD Respite Program provides financial assistance to allow caregivers a break to…
SSRA Announces EURORDIS Membership
The Superficial Siderosis Research Alliance is pleased to announce its membership application to EURORDIS, a federation…
The SSRA Marks Our Second Year
The Superficial Siderosis Research Alliance celebrates its 2nd anniversary on September 24, 2021 Since its…
The World of Digital Awareness
Sharing Our Rare Disorder Journey As part of our awareness campaign this September, our SS…
Round-Up For Research
Round Up For Research To spread awareness during September Superficial Siderosis month, Caffe’ Crema owners…
Superficial Siderosis Awareness Month is Here
Superficial Siderosis Awareness Month is Here September has arrived, and the SSRA regional directors are…
Speeding Therapy Access Today
Removing Regulatory Roadblocks There are over 7,000 identified rare diseases and disorders in the world.…
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