superficial siderosis advocate of the year

Superficial Siderosis Advocate of the Year


Dear Superficial Siderosis Research Alliance members,

We are thrilled to announce that Rhys Holmes has been named the Superficial Siderosis Advocate of the Year for his outstanding contributions to our organization and the rare disease community.

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Rhys and his Member of Parliament, Jessica Morden

As the Director of SSRA UK, Rhys has demonstrated unparalleled dedication to advancing our mission of raising awareness and funding for superficial siderosis research. He has tirelessly networked with multiple rare diseases and neurodegenerative organizations based in London, helping to elevate the profile of superficial siderosis and increase support for our cause.

Rhys has been instrumental in helping to establish the Superficial Siderosis Research Alliance is a recognized registered charity in the UK and Wales, enabling us to expand our reach and impact. His hard work and leadership have inspired others to get involved and make a difference.

We are proud to have Rhys as a member of our organization and grateful for his commitment to improving the lives of those affected by superficial siderosis. Please join us in congratulating him on this well-deserved recognition as the Superficial Siderosis Advocate of the Year.


Kyle Dempsey, President

Rori Daniel, Executive Director

SSRA Leadership Team

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