the power of community: superficial siderosis awareness month 2023:

The Power of Community: Superficial Siderosis Awareness Month 2023:


Our Connection Is Our Strength

superficial siderosis awareness month september 2023 power of community

September is almost upon us again, and with it comes the annual Superficial Siderosis Awareness Month. This year, we are embracing a theme that resonates deeply with every community member: “Power of Community: Our Connection is our Strength” #teamsuperficialsiderosis.

The journey with Superficial Siderosis (SS) is one that no one should walk alone. It’s a path filled with challenges, questions, and moments of uncertainty. But it’s also a journey filled with hope, resilience, and the undeniable strength of unity. This year, we celebrate the power of our community, the bonds we’ve forged, and the collective force that propels us forward.

A Month-Long Information-Palooza

Prepare for an exhilarating month filled with abundant SS facts and awareness initiatives. We aim to enlighten, educate, and empower every individual, whether you’re newly diagnosed, a long-time patient, a caregiver, or someone who wants to learn more.

dr levy
Dr. Michael Levy

Kicking off our month is an exclusive one-on-one interview with Dr. Michael Levy. His insights, expertise, and dedication to the SS community have been invaluable, and we are thrilled to share this conversation with all of you.

Last year, our theme was “Educate the World One Conversation at a Time,”#EducateTheWorld. It was a call to action, urging everyone to share their stories, experiences, and knowledge. You raised awareness and educated the world about this condition by conversing, sharing a post, or telling someone about your journey with SS. This is what powers our SS community!

Looking Ahead: Our Connection

symptom head

Our community’s strength lies in its diversity and unity. Every member, from patients to caregivers, medical professionals to volunteers, plays a crucial role in our collective journey. For the SSRA, every day is a battle for Superficial Siderosis Awareness, not just in September. We’re championing the cause to uplift those affected by SS every moment. Whether today or any other day, SSRA stands at the forefront, bridging connections and enlightening communities through impactful awareness and educational initiatives. Join us in this relentless pursuit by joining #teamsuperficialsiderosis

Join Us in Celebrating Our Community

Introducing: The Volunteer Spotlight Series

Stay tuned, get inspired, and celebrate the heartbeats of our community! #VolunteerSpotlightSeries Join us on a journey as we shine a light on the incredible individuals who make our mission possible. From behind-the-scenes heroes to front-line champions, our Volunteer Spotlight Series will unveil the passion, dedication, and stories of those who give selflessly to our cause.

As we embark on this month of awareness, let’s remember the words of Kyle, “Join us.” Let’s come together, not just to raise awareness but to celebrate the power of our community. Our connection is our strength; together, we can make a difference.

Together, we are #teamsuperficialsiderosis.

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