David Werring, FRCP, Ph.D., FESO Joins the SSRA Medical Advisory Board
The Superficial Siderosis Research Alliance is pleased to announce the appointment of Professor David Werring,…
Reflections
Recently our Australian SSRA director Fiona stumbled upon an Instagram photo shared by another rare…
ROADMAP Project
Earlier this year, the Castleman Disease Collaborative Network reached out to the SSRA with a…
SSRA Announces EURORDIS Membership
The Superficial Siderosis Research Alliance is pleased to announce its membership application to EURORDIS, a federation…
The World of Digital Awareness
Sharing Our Rare Disorder Journey As part of our awareness campaign this September, our SS…
A Tough Decision
Deciding to Start a Charity is a Tough Decision I remember when we heard our…
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