Our Connection Is Our Strength September is almost upon us again, and with it comes the annual Superficial Siderosis Awareness Month. This year, we are embracing a theme that resonates deeply with every community member: “Power of Community: Our Connection is our Strength” #teamsuperficialsiderosis. The journey with Superficial Siderosis (SS) is one that no one should walk alone. It’s a […]
Summer Update 2022 Unbelievably we’re about to begin the second half of 2022 already. If you had a chance to look through our 2021 Annual Report, you might be familiar with the SSRA plans for this year. So it seems the perfect time to let everyone know about our progress with a summer update on what’s happening behind the scenes. […]
The Superficial Siderosis Research Alliance is pleased to announce the appointment of Natallia Kharytaniuk MB BCH MRCS(ENT) MRCS(I) MCH, a clinical doctoral research fellow at the Ear Institute, University College London, UK, to the SSRA Medical and Scientific Advisory Board. Dr. Kharytaniuk’s background is clinical; obtaining her medical degree with second-class honors at the National University of Ireland, Galway. She […]
Our Progress The Superficial Siderosis Research Alliance was organized during the summer of 2019 and began operations in early October. Our initial fundraising effort began in earnest in November, and we ended 2019 much further than we imagined. We began expanding our educational, organization, and patient registry websites in 2020 to provide a permanent 24/7 resource to our community. In […]
