Superficial Siderosis Advocate of the Year
Dear Superficial Siderosis Research Alliance members, We are thrilled to announce that Rhys Holmes has…
Educate The World
September is Superficial Siderosis Month Our annual awareness campaign is a powerful way to raise…
ROADMAP Project
Earlier this year, the Castleman Disease Collaborative Network reached out to the SSRA with a…
Games, Trains, and SS Awareness
Game Train USA Driving December SS Awareness Game Train USA believes by championing local nonprofits…
SSRA Announces EURORDIS Membership
The Superficial Siderosis Research Alliance is pleased to announce its membership application to EURORDIS, a federation…
The World of Digital Awareness
Sharing Our Rare Disorder Journey As part of our awareness campaign this September, our SS…
Round-Up For Research
Round Up For Research To spread awareness during September Superficial Siderosis month, Caffe’ Crema owners…
Superficial Siderosis Awareness Month is Here
Superficial Siderosis Awareness Month is Here September has arrived, and the SSRA regional directors are…
A Digital Face to Face on Capitol Hill
Rare Disease Legislative Advocacy In A Virtual World Every year representatives from rare disease organizations…
Speeding Therapy Access Today
Removing Regulatory Roadblocks There are over 7,000 identified rare diseases and disorders in the world.…
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