Supporting Our Community

What the SSRA Offers for Superficial Siderosis Patients, Caregivers, and Clinicians At the Superficial Siderosis Research Alliance (SSRA), our mission is to empower patients, caregivers, and medical professionals with the resources and tools they need to better understand, manage, and navigate life with superficial siderosis (SS). Whether you’re newly diagnosed or have been living with SS for years, we want […]

Caregiver Respite Program

Caregiver Assistance The NORD Respite Program provides financial assistance to allow caregivers a break to attend a conference, event, or simple day out. Financial assistance is offered as a grant of up to $800 annually for those who qualify. A first-of-its-kind assistance program, this grant is designed for caregivers of someone diagnosed with a rare disorder. We all understand how […]