Superficial Siderosis Research Alliance

  • Understanding

    Imagine your brain is like a city, with different areas responsible for specific tasks. Now, imagine if toxic dust (in this case, iron particles) started to settle over the city, disrupting its normal functioning. That’s what happens in Superficial Siderosis.

  • Patient Info

    Understanding which type of superficial siderosis you have is vital for doctors. Surgery might help slow progression in iSS type 1, but it can’t undo existing damage. Superficial siderosis is a complex and often misunderstood condition. Its three types have different causes and symptoms. Knowing more about it can help in diagnosis and treatment, making life easier for those affected.

  • Living With SS

    The SSRA digital magazine for superficial siderosis patients, caregivers, family, and friends.

  • Community

    Connect with other people who are living with a superficial siderosis diagnosis. Ask questions in the group and receive real time advice on their experiences.

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