A Milestone for Our Community

A rare disease diagnosis is never easy for the person receiving it, the family absorbing it, or the doctor delivering the news. Our first instinct is always to search for answers, but for those of us living with or supporting someone with superficial siderosis, those answers are often elusive. At the Superficial Siderosis Research Alliance (SSRA), we understand this journey […]

Symposium 2025 Countdown

An Unforgettable Symposium Experience Awaits As we move into the final weeks before the first Superficial Siderosis Symposium, excitement is building across the SSRA community and beyond. What began as a bold idea is now set to become a landmark event in the rare disease world. With over 200 in-person and remote attendees already registered, we are thrilled to witness […]