SSRA Announces EURORDIS Membership

The Superficial Siderosis Research Alliance is pleased to announce its membership application to EURORDIS, a federation of patient organizations and people active in rare diseases was recently accepted by the EURODIS Board of Directors. By becoming a member of EURORDIS, The SSRA reaffirms its commitment to provide research support to all superficial siderosis patients, no matter where they may currently reside. Due […]

SSRA Admin advocacy 1 2 min read

January 12, 2021

Our Coder Search Begins

Measuring The Iron When a Two-year observational study on the efficacy of deferiprone1 was released, one finding stood out. Physicians had submitted the participants’ MRIs during several stages of the research; differences in MRI equipment, sequencing settings, and magnification produced data that was difficult, if not sometimes impossible, to compare. MRI sequencing is required to track existing hemosiderin levels characterized […]

SSRA Admin Research Projects 0 2 min read

SSRA Announces EURORDIS Membership

Our Coder Search Begins

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