Supporting Our Community

What the SSRA Offers for Superficial Siderosis Patients, Caregivers, and Clinicians At the Superficial Siderosis Research Alliance (SSRA), our mission is to empower patients, caregivers, and medical professionals with the resources and tools they need to better understand, manage, and navigate life with superficial siderosis (SS). Whether you’re newly diagnosed or have been living with SS for years, we want […]

September Spotlight on Superficial Siderosis

Today marks the beginning of our Spotlight on Superficial Siderosis Week, a special time to raise awareness, share valuable resources, and shine a light on this rare neurodegenerative disorder. We at the Superficial Siderosis Research Alliance (SSRA) are thrilled to kick off this week by announcing an exciting development many of you have eagerly awaited! We are proud to share […]