Discover how the Superficial Siderosis Research Alliance (SSRA) is turning Giving Tuesday generosity into groundbreaking rare disease research, patient support, and advocacy progress. What is Giving Tuesday and Why It Matters for Rare Diseases Every year, after the excitement of Black Friday and Cyber Monday, comes a day dedicated to giving back: Giving Tuesday. Launched in 2012, Giving Tuesday began […]
Racing Together for Superficial Siderosis Research Every September, the Superficial Siderosis Research Alliance (SSRA) invites our community to come together for the Annual Trail Grinder Benefit Race for Superficial Siderosis, one of the most meaningful events of the year. What began as a local run in East Texas has now grown into a global movement, with participants across the world […]
We’re excited to announce the 3rd Annual Trail Grinder Run, Sponsored by Caffe Crema and benefiting the Superficial Siderosis Research! The event will happen on Saturday, September 28th, at the Atlanta MTB Trail in Atlanta, Texas. It will offer a choice of 5K, 10K, and 30K runs—something for everyone, from beginners to seasoned trail runners. Caffe’ Crema is a local East Texas […]
Game Train USA Driving December SS Awareness Game Train USA believes by championing local nonprofits and the causes they support is how they can give back to the community in a very big way. We’re proud to announce the Rocky Mountain Superficial Siderosis Research Alliance has been chosen as their featured charity for the month of December. We would like […]
Let’s Get Ready to Rumble I have to say I’m a little jealous. There are some people out there who are running away with some rock bottom deals. It’s hard to believe the auction is almost over, but the smart buyers always stake their claim early. So with only two bidding days left, I thought this would be an excellent […]
Recently I’ve been working on a new funding application for a much larger superficial siderosis research project. While this exercise requires listing and rewriting the exact details I share repeatedly, I realized the most crucial question is, why does superficial siderosis research matter? What separates our rare condition from the 7,000 other rare diseases and disorders to make us special […]
Round Up For Research To spread awareness during September Superficial Siderosis month, Caffe’ Crema owners Tanya and Greg Beers have added a “ROUND-UP FOR RESEARCH” option to their online ordering app and in-store sales. Customers will be given an option of rounding up their purchase to the nearest whole dollar for donation to the SSRA. They also can bump their […]
