Events
Requests for a remote viewing link may be made up to the day of the event. You will receive three unique daily links, but you need to sign up only once.
Join the Superficial Siderosis Research Alliance (SSRA) for a three-day symposium dedicated to patients, caregivers, clinicians, and researchers focused on advancing care, treatment, and research for superficial siderosis.
The Superficial Siderosis Research Alliance sponsors this event, and it is free for all participants. Tickets for in-person attendance are closed.
Can’t make it to Texas? You can still make a difference! This year, we’re offering an option to join the 2025 Trail Grinder Virtual Race. You can go solo or put together your team. Choose your favorite trail, street, or bike path. Track your distance, take a selfie, and show your support for superficial siderosis research!
- Tag our social media page on race day, September 13, 2025, with #TeamSuperficialSiderosis.
- List how you participated (Walk, Run, Cycle, or Roll).
- What distance
- One participation winner will be chosen from each of the four categories for:
- Longest Distance
- Best Selfie
- The highest social media interactions (likes, shares, comments)
Winners will receive a #teamsuperficialsiderosis shirt in the size/color of your choice!
All ticket fees are a Virtual Participation Donation. If you would like to donate instead of participating, you can follow this DONATE LINK




