Recently our Australian SSRA director Fiona stumbled upon an Instagram photo shared by another rare disease organization. It was a quote from a piece I had written over four years ago for the U.K based charity, The Silent Bleed. This was before Gary and I met Kyle, and an organization like the SSRA was an out-of-reach dream. When I went […]
SSRA Leadership 2022 The Superficial Siderosis Research Alliance is pleased to share the appointment of Kelly Morgan to the SSRA Board of Directors. In addition, Ms. Morgan will serve as a member of the Grant Oversight Group and Board Member-at-Large. Following the appointment of Ms. Morgan, the Board will comprise ten directors. “We are pleased to welcome Kelly Morgan to the SSRA Board,” […]
