June 11-13, 2025 | Harvard University | Cambridge, MA

Join the Superficial Siderosis Research Alliance (SSRA) for a three-day symposium dedicated to patients, caregivers, clinicians, and researchers focused on advancing care, treatment, and research for superficial siderosis.

*Additional speakers are pending confirmation and will be announced as details are finalized.

Event Schedule for Activities and Programs

Symposium Reservation

The QR code or ticket link offers reservations for attendance by the day or requests a remote viewing link (for those unable to attend in person).

Reserve

Wednesday, June 11, 2025 | Welcome Reception

Loeb House, Harvard University

5:00 PM – 8:00 PM

Kick off the symposium with an evening of connection and conversation at the historic Harvard Loeb House. Enjoy a cocktail hour and a small plate buffet while mingling with patients, caregivers, medical professionals, and researchers.

Who Should Attend?
Patients, caregivers, and medical professionals. All registered attendees are welcome!

Thursday, June 12, 2025 | Patient & Clinical Care Day

Loeb House, Harvard University

8:00 AM – 8:45 AM Registration
8:50 AM Welcome
9:00 AM – 12:00 PM Keynote Address and Speakers
12:00 PM- 1:00 PM Lunch Break
1:15 PM – 3:00 PM Interactive Panel Discussion

A full day of discussions led by top medical experts covering clinical care and current treatment approaches. Q&A Panel Discussion – Engage with medical professionals and researchers during our interactive session.

Who Should Attend?
Patients, caregivers, and medical professionals

Open to: Patients, caregivers, and medical professionals
Request a remote viewing link (for those unable to attend in person)

Friday, June 13, 2025 | Medical Research Day

Loeb House, Harvard University

9:00 AM – 2:00 PM Agenda TBD

It is a focused day for medical professionals dedicated to ongoing and future research in superficial siderosis. Dr. Michael Levy and Professor David Werring will lead open discussions.

Who Should Attend?
Medical professionals, researchers, and clinicians

Open to: Medical professionals
Request a remote viewing link (for those unable to attend in person)

michael levy md superficial siderosis awareness month

Michael Levy MD, PhD

SSRA Chief Medical and Research Advisor
SSRA Medical Advisory Board

Associate Professor, Harvard Medical School

Research Director, Division of Neuroimmunology & Neuroinfectious Disease
Director, Superficial Siderosis Clinic and Research Laboratory Director, Neuroimmunology Clinic and Research Laboratory
Department of Neurology,

Massachusetts General Hospital

David Werring FRCP, PhD, FESO

SSRA Medical Advisory Board SSRA Research Group
Professor of Clinical Neurology
Head of Research, Brain Repair and Rehabilitation
UCL Queen Square Institute of Neurology
Honorary Consultant Neurologist
Comprehensive Stroke Service
National Hospital for Neurology and Neurosurgery, Queen Square
University College Hospitals NHS Foundation Trust
NIHR Senior Investigator
Programme Co-Director, MSc. / MRes / Diploma / PG Certificate in Stroke Medicine, UCL Queen Square Institute of Neurology
President, British and Irish Association of Stroke Physicians (BIASP)
Life Member, Clare Hall, University of Cambridge
London

Wouter Schievink MD

Professor of Neurosurgery, Cedars-Sinai

Director, Cerebrospinal Fluid Leak Program

Director, Microvascular Neurosurgery Program Cedars-Sinai Hospital Los Angeles

Spinal CSF Leak Foundation Medical Advisory Board

Philip A. Haddad MD, MPH, MHA, MSHCI, CHES, CAHIMS, CHCQM

SSRA Medical Advisory Board
Chief of Hematology/Oncology Associate Chief of Staff Chief of Research Professor of Medicine Overton Brooks VAMC/LSUHSC-S
Shreveport

Natallia Kharytaniuk MB BCH MRCS(ENT) MRCS(I) MCH

SSRA Medical Advisory Board SSRA Research Group
Higher Specialist Trainee in Audiovestibular Medicine, Royal National ENT and Eastman Dental Hospital University College Hospital
London