Superficial Siderosis Symposium
Our First-Ever Superficial Siderosis Symposium 2025
We are thrilled to announce the Superficial Siderosis Symposium 2025, an extraordinary event hosted by the Superficial Siderosis Research Alliance (SSRA). This inaugural conference will occur at the prestigious Harvard University’s Loeb House from June 11 to June 13, 2025. Please consider joining us for this informative event in Cambridge, Massachusetts.
A Historic Venue: Loeb House at Harvard University
Located in the heart of Harvard Yard, the Loeb House combines historical charm with modern conference facilities. Formerly the residence of Harvard’s presidents, this elegant venue has been the site of countless influential gatherings, and we are honored to bring the global Superficial Siderosis community to this storied location. The house is within walking distance from the Memorial Church, Widener Library, and the Harvard Art Museums.
This symposium marks a pivotal moment for patients, families, clinicians, and researchers as we unite to share knowledge, discuss breakthroughs, and forge deeper connections.
Event Highlights: Superficial Siderosis Symposium 2025
Wednesday, June 11, 2025: Welcome Reception
Kick off the symposium with a warm and welcoming reception and short program, open to all presenters, attendees, clinicians, and families affected by Superficial Siderosis.
- Time: 5:00 PM to 8:00 PM
- Short Opening Remarks and Welcome:
- Kyle Dempsey, President of the Superficial Siderosis Research Alliance
- Dr. Michael Levy, Chief Medical Advisor
- Video Short
- Small Plate Reception
This evening provides a unique opportunity to meet SSRA leadership from the U.S., UK, and Australia, alongside clinical care leaders and fellow members of the Superficial Siderosis community. Let’s start the event with camaraderie, conversation, and a shared vision for the future.
Thursday, June 12, 2025: Patient and Clinical Care Day
Dive deep into patient-focused topics with a full day of education and engagement designed for patients, caregivers, and healthcare professionals.
- Time: 8:00 AM to 3:00 PM
- Keynote Speaker:
- Dr. Michael Levy, MD, PhD, Director of the Superficial Siderosis Laboratory and Clinic at Massachusetts General Hospital
- Expert Sessions: Invited speakers (TBD) will address critical issues, including symptom management, chelation therapy, and improving quality of life.
The day will conclude with a panel discussion and live audience Q&A, giving you a rare opportunity to ask questions directly to the world’s most knowledgeable Superficial Siderosis experts.
Friday, June 13, 2025: Research Conference
Our final day is dedicated to medical professionals, focusing on research and clinical advancements.
- Time: 8:00 AM to 1:00 PM
- Learn about the latest observations in Superficial Siderosis, including potential treatment avenues and collaborative initiatives to advance research.
A Global Event
Can’t make it to Cambridge, Massachusetts? We’re working hard to livestream the event so that members of the global Superficial Siderosis community can participate in this historic moment. Stay tuned for more details!
Reservations Required
Due to limited seating (max capacity: 90–100), reservations are required. Details on how to secure your spot will be shared soon. Don’t miss this opportunity to be part of the first-ever Superficial Siderosis Symposium!
Join the Superficial Siderosis Community
The Superficial Siderosis Symposium 2025 is more than an event—it’s a milestone in our journey to improve the lives of those affected by this rare condition. Whether you’re a patient, caregiver, clinician, or researcher, your voice matters in our fight to advance knowledge and treatment.
Let’s make history together. Mark your calendars for June 11–13, 2025, and plan to attend this groundbreaking event.
Stay tuned for updates; we can’t wait to see you at Harvard University’s Loeb House!
