Superficial Siderosis Information for Healthcare Professionals
We are passionately committed to supporting healthcare professionals who specialize in the care and treatment of superficial siderosis. Together, we work to enhance the quality of care for individuals affected by this rare neurological disorder.
Our organization is focused on delivering best-practice care education, offering up-to-date information, and expanding access to vital educational tools. Our resources are designed to assist doctors, nurses, and every healthcare team member in providing the most effective care for patients with superficial siderosis.
HELPLINE
If you have clinical care questions about superficial siderosis, please email administrator@superficialsiderosis.org, and we will connect you with the best source available.
GENERAL INFORMATION LINKS
DOWNLOADS
CLINICAL CARE
PATIENT RESOURCES
- MEDICAL ALERT CARDS: Order Link
- SUPERFICIAL SIDEROSIS INFORMATION BROCHURES
- DIGITAL PATIENT MAGAZINE: LIVING WITH SUPERFICIAL SIDEROSIS
- VESTIBULAR EXERCISES: Home-based vestibular exercises to help with balance and mobility. Computer, Smart TV access, or phone app download
- SUPERFICIAL SIDEROSIS PATIENT REGISTRY: Global Registry
PATIENT FACT SHEETS
- DIET AND SUPERFICIAL SIDEROSIS: Nutrition and diet recommendations to promote brain health
- CHELATION THERAPY DIET: Recommendations for staying healthy while on chelation therapy
- EXPLORING CURCUMIN: Antioxidant
- URINARY INCONTINENCE: Guideline for management
