Welcome to  ssra.livingwithss.com website (the “Website”), operated by the Superficial Siderosis Research Alliance (“SSRA”, “we”, or “us”). We are expecting approval in the fall of 2019 as a section 501(c)(3) nonprofit that seeks research funding in support of the superficial siderosis community. By accessing the Website, you agree to be bound by these Terms of Use and all applicable federal, state, and local laws and regulations.

Privacy Policy

We value and respect your privacy. If you use the Website, you agree that your activities are covered by our Privacy Policy.

Use of Publications, Trademarks, and Logos

We may provide information and resources on our mission, research projects, and services, including articles, press releases, photographs, videos, presentations, client testimonials, volunteer services stories, reports, newsletters, and interviews with community partners and volunteers (collectively, “Publications”). Unless otherwise expressly stated, including as stated in “Third Party Content” below, all content provided on the Website is intellectual property that belongs to us.

You are permitted to download information from the Website for your own personal informational use. You may also copy, distribute, adapt, and transmit content from this Website solely for not-for-profit or educational purposes, provided that the use contains the following attribution: “Reproduced with permission of SSRA”. You may not suggest any other relationship, endorsement, or affiliation with us unless you obtain express written permission.

For any other use, you must obtain express written permission from us.

You may not use or duplicate any SSRA logos or trademarks without express written permission from us.

To request permission for use of copyrighted material, trademarks, or logos, send an email to administrator@ssra.livingwithss.com.

Links to Other Websites

Links on the Website that lead to outside services and resources are provided for convenience only. We do not control the accuracy or availability of those outside services and resources. SSRA does not endorse those organizations or the information provided by other organizations. Any concerns regarding any such service or resource, or any link, should be directed to the particular service or resource.

Third Party Content

We respect copyright and trademark laws. Third-party material may appear on our site, and those creators retain all rights to their works, except where noted.

No Guarantees

Though we strive to keep the information available on the Website current and accurate, errors can occur. We provide the information on the Website with no representations or guarantees of accuracy, completeness, or timeliness. SSRA will not be liable to you or any other person for any damages that result from the use or inability to use the Website, or as a result of any content, information, services, or resources made available through the Website.

Indemnification

You agree to indemnify and hold harmless each of us, our affiliates, officers, directors, employees and volunteers from any claim or demand, including reasonable attorneys’ fees, made by any third party due to, arising out of, or related to your use of this Website, the violation of these Terms of Use by you, or the infringement by you of any intellectual property or other right of any person or entity.

About These Terms – General Provisions

If we do not immediately take action to address a violation of these Terms of Use, we are not waiving our rights to take action in the future. If any particular provision of these Terms of Use is found to be unenforceable, that provision will be null and void and will not affect any of the other provisions.

This Website is owned and operated by us from our office in Texas. Your use of the Website, and any related legal action, will be governed by the laws of the State of Texas, without regard to conflict of laws principles. The sole jurisdiction for any litigation arising out of your use of or inquiries to the Website will be an appropriate federal or state court located in Marshall, Texas.

Changes to the Terms of Use

We reserve the right to make changes to any information or services on the Website, including these Terms of Use, without notice to you. The most current Terms of Use will be posted here on the Website and will be effective upon posting. The Effective Date will be posted with the most current Terms of Use. Be sure to return to this page periodically to ensure familiarity with the most current version of these Terms of Use.

Effective Date: July 27, 2019