Legislative Advocacy

WHAT DEFINES A RARE DISORDER?

In the United States, a rare disease is defined as a condition that affects fewer than 200,000 people in the US. There are over 7,000 identified rare diseases and disorders.Superficial Siderosis is classified as an ultra-rare disorder with less than 300 cases identified in the U.S. and a yet to be determined number worldwide.
SUPERFICIAL SIDEROSIS RESEARCH ALLIANCE© 2023 - All rights reserved Federal Tax ID: 84-2515094
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