SAVE THE DATE

VIRTUAL RARE DISEASE WEEK ON CAPITOL HILL

July 14th to July 22nd, 2021

Rare Disease Week on Capitol Hill brings together rare disease community members from across the country to be educated on federal legislative issues, meet other advocates, and share their unique stories with legislators. While we had hoped to host this event in person for the safety of all advocates, Rare Disease Week will be going virtual for 2021.

Virtual Rare Disease Week on Capitol Hill 2021 will be held July 14th through July 22nd and will include the same opportunities as in-person Rare Disease Week, plus more!

June 22 – Training Webinar
June 29 – Team Coordinator Webinar
July 1 – New Attendees Webinar
July 8 – Fast Forward for Rare Practice Your Pitch Webinar
July 12 – Team Coordinators Virtual Office Hours
July 13 – Advocate Virtual Office Hours
July 19 – Advocate Virtual Office Hours